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Titlebook: GDPR and Biobanking; Individual Rights, P Santa Slokenberga,Olga Tzortzatou,Jane Reichel Book‘‘‘‘‘‘‘‘ 2021 The Editor(s) (if applicable) an

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發(fā)表于 2025-3-21 17:54:42 | 只看該作者 |倒序?yàn)g覽 |閱讀模式
書(shū)目名稱GDPR and Biobanking
副標(biāo)題Individual Rights, P
編輯Santa Slokenberga,Olga Tzortzatou,Jane Reichel
視頻videohttp://file.papertrans.cn/381/380066/380066.mp4
概述Presents the most up-to-date overview of European data protection frameworks for biobank research.Offers a comprehensive and in-depth analysis of genetic data governance at the EU level.Shares valuabl
叢書(shū)名稱Law, Governance and Technology Series
圖書(shū)封面Titlebook: GDPR and Biobanking; Individual Rights, P Santa Slokenberga,Olga Tzortzatou,Jane Reichel Book‘‘‘‘‘‘‘‘ 2021 The Editor(s) (if applicable) an
描述.This open access book focuses on the discrepancies in biobank research regulations that are among the most significant hurdles to effective research collaboration. The General Data Protection Regulation (GDPR) has established stringent requirements for the processing of health and genetic data, while simultaneously allowing considerable multi-level exceptions for the purposes of scientific research. In addition to directly applicable exceptions, the GDPR places the regulatory responsibility for further defining how the Member States strike a balance between the individuals‘ rights and the public interest in research within their national legal orders. Since Member States‘ approaches to the trade-off between data subjects‘ rights on the one hand, and appropriate safeguards on the other, differ according to their ethical and legal traditions, their data protection requirements for research also differ considerably.. .This study takes a comprehensive approach to determine how the GDPR affects regulatory regimes on the use of personal data in biobanking research, with a particular focus on the balance between individuals‘ rights, public interest and scientific research. In this regard
出版日期Book‘‘‘‘‘‘‘‘ 2021
關(guān)鍵詞Biobank research; GDPR; Article 89 GDPR; Data protection; Informational privacy; ELSI in genetics and gen
版次1
doihttps://doi.org/10.1007/978-3-030-49388-2
isbn_softcover978-3-030-49390-5
isbn_ebook978-3-030-49388-2Series ISSN 2352-1902 Series E-ISSN 2352-1910
issn_series 2352-1902
copyrightThe Editor(s) (if applicable) and The Author(s) 2021
The information of publication is updating

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沙發(fā)
發(fā)表于 2025-3-21 21:25:41 | 只看該作者
板凳
發(fā)表于 2025-3-22 03:14:52 | 只看該作者
Striking a Balance Between Personalised Genetics and Privacy Protection from the Perspective of GDPRo the ethical balancing of the interests of privacy and the interest of conducting effective scientific, e.g. biomedical research, in practice. In order to reach this one must both understand the specific challenges that are related to new developments within the field of personalised medicine where
地板
發(fā)表于 2025-3-22 08:37:19 | 只看該作者
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發(fā)表于 2025-3-22 10:45:14 | 只看該作者
Biobank and Biomedical Research: Responsibilities of Controllers and Processors Under the EU Generalorrelating large amounts of genetic, clinical and behavioural data. These data are particularly sensitive in nature and the risk of privacy invasion and misuse is high. The EU General Data Protection Regulation (GDPR) developed and increased harmonisation, resulting in a framework in which the speci
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發(fā)表于 2025-3-22 16:28:32 | 只看該作者
Individual Rights in Biobank Research Under the GDPR, stored and used. Biobanks, which require the collection, use and re-use of large quantities of biological samples and data, will be affected by the proposed changes. In seeking to require ‘data protection by design’, the GDPR provides data subjects with certain individual rights. They are, the rig
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發(fā)表于 2025-3-22 20:41:13 | 只看該作者
Safeguards and Derogations Relating to Processing for Scientific Purposes: Article 89 Analysis for Bh is of interest for biobank research. On the one hand, under this condition, the further processing of personal data will not be incompatible with the initial purposes for which the data were originally collected and processed and it allows for retaining data for longer periods of time for scientif
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發(fā)表于 2025-3-23 00:03:42 | 只看該作者
Biobank Oversight and Sanctions Under the General Data Protection Regulationegulation as they relate to the biobanking context. These mechanisms might be considered as meta-mechanisms—mechanisms relating to, but not consisting of, substantive legal principles—functioning in tandem to ensure biobank compliance with data protection principles. Each of the mechanisms outlines,
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發(fā)表于 2025-3-23 03:52:42 | 只看該作者
Brexit and Biobanking: GDPR Perspectivesd might never have happened. This chapter nonetheless contributes to the edited collection in that it reports on the then legal position in the UK, and presents an analysis of two possible immediate post-Brexit legal futures, for data protection law as applicable to biobanking in the UK. These post-
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發(fā)表于 2025-3-23 08:46:31 | 只看該作者
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