Titlebook: End of Life and People with Intellectual and Developmental Disability; Contemporary Issues, Roger J. Stancliffe,Michele Y. Wiese,Mary McCar

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Emilie Morwenna Whitaker,Paul Atkinsone chapter concludes with a reflection scenario and questions, challenging the reader to consider how end-of-life experiences of people with intellectual and developmental disability could and should be better approached.

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PARA

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https://doi.org/10.1007/978-981-15-8431-2, anticipated and potentially avoidable deaths, and deaths during the COVID-19 pandemic. Throughout, comparisons are made to the general population. Reflection questions to translate research to practice are given, as well as practical resources.

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Keiichi Kubota,Hitoshi Takehara family, and many have struggled with moral distress as they feel forced to act in a manner contrary to their own care beliefs. Three case studies with reflective questions about caring for people with Down syndrome and dementia are offered, one from the COVID-19 period.

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,The Swedish Reform—A Radical Compromise,al cross-training packages from several countries. Guided by the WHO definition of palliative care (WHO, 2016), the chapter also identifies critical issues and how training should be modified and delivered to deal with the growing community-based and in-home provision of end-of-life care.

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Reform autorit?rer Herrschaft in Nordafrikanked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others’ funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.

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Reform der Unternehmensbesteuerunggagement with an end-of-life doula. End-of-life doulas can educate, bring understanding and choice to people living with intellectual and developmental disability who seek to actively engage in their own dying or that of someone close to them.

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J. Enders,H. F. Boer,D. F. Westerheijdenmost people, the particular challenges associated with the providing end-of-life care in a group home setting are discussed and practical management strategies provided that encompass not only the care of the person who is dying, but also the support of fellow residents and care staff.