標題: Titlebook: GDPR and Biobanking; Individual Rights, P Santa Slokenberga,Olga Tzortzatou,Jane Reichel Book‘‘‘‘‘‘‘‘ 2021 The Editor(s) (if applicable) an [打印本頁] 作者: Baleful 時間: 2025-3-21 17:54
書目名稱GDPR and Biobanking影響因子(影響力)
書目名稱GDPR and Biobanking影響因子(影響力)學科排名
書目名稱GDPR and Biobanking網(wǎng)絡(luò)公開度
書目名稱GDPR and Biobanking網(wǎng)絡(luò)公開度學科排名
書目名稱GDPR and Biobanking被引頻次
書目名稱GDPR and Biobanking被引頻次學科排名
書目名稱GDPR and Biobanking年度引用
書目名稱GDPR and Biobanking年度引用學科排名
書目名稱GDPR and Biobanking讀者反饋
書目名稱GDPR and Biobanking讀者反饋學科排名
作者: 格子架 時間: 2025-3-21 21:25 作者: Urgency 時間: 2025-3-22 03:14
Striking a Balance Between Personalised Genetics and Privacy Protection from the Perspective of GDPRo the ethical balancing of the interests of privacy and the interest of conducting effective scientific, e.g. biomedical research, in practice. In order to reach this one must both understand the specific challenges that are related to new developments within the field of personalised medicine where作者: CAJ 時間: 2025-3-22 08:37 作者: SHRIK 時間: 2025-3-22 10:45
Biobank and Biomedical Research: Responsibilities of Controllers and Processors Under the EU Generalorrelating large amounts of genetic, clinical and behavioural data. These data are particularly sensitive in nature and the risk of privacy invasion and misuse is high. The EU General Data Protection Regulation (GDPR) developed and increased harmonisation, resulting in a framework in which the speci作者: 鑲嵌細工 時間: 2025-3-22 16:28
Individual Rights in Biobank Research Under the GDPR, stored and used. Biobanks, which require the collection, use and re-use of large quantities of biological samples and data, will be affected by the proposed changes. In seeking to require ‘data protection by design’, the GDPR provides data subjects with certain individual rights. They are, the rig作者: 鑲嵌細工 時間: 2025-3-22 20:41
Safeguards and Derogations Relating to Processing for Scientific Purposes: Article 89 Analysis for Bh is of interest for biobank research. On the one hand, under this condition, the further processing of personal data will not be incompatible with the initial purposes for which the data were originally collected and processed and it allows for retaining data for longer periods of time for scientif作者: recession 時間: 2025-3-23 00:03
Biobank Oversight and Sanctions Under the General Data Protection Regulationegulation as they relate to the biobanking context. These mechanisms might be considered as meta-mechanisms—mechanisms relating to, but not consisting of, substantive legal principles—functioning in tandem to ensure biobank compliance with data protection principles. Each of the mechanisms outlines,作者: 抱狗不敢前 時間: 2025-3-23 03:52
Brexit and Biobanking: GDPR Perspectivesd might never have happened. This chapter nonetheless contributes to the edited collection in that it reports on the then legal position in the UK, and presents an analysis of two possible immediate post-Brexit legal futures, for data protection law as applicable to biobanking in the UK. These post-作者: osteoclasts 時間: 2025-3-23 08:46 作者: 無瑕疵 時間: 2025-3-23 10:47 作者: 暗指 時間: 2025-3-23 16:59
Regulatory Environment for Biobanking in Estonia in biobanking are subject to rules stemming from various legal sources. In the case of the population biobank, participants give open consent for their data and tissue to be used in genetic research. Most other entities do not have the possibility to obtain open research consent for the use of pers作者: CHECK 時間: 2025-3-23 18:15
Access to Biomedical Research Material and the Right to Data Protection in Finlandudy subjects from the data protection point of view. The GDPR is just one of many pieces of legislation affecting the rights of individuals, and it allows for significant variation between the EU Member States. Finnish law relating to biomedical research has materially changed in recent years and so作者: 杠桿 時間: 2025-3-24 00:53
Research Biobanking, Personal Data Protection and Implementation of the GDPR in Francehealth data, especially in 2004, 2016 and 2018, set up a strict legal regime for processing sensitive personal data, including for research purposes. In recent years, French law has evolved proactively and in parallel with the work of the European Union (EU) on the preparation of what became the Gen作者: 老巫婆 時間: 2025-3-24 05:10 作者: 秘傳 時間: 2025-3-24 09:39 作者: 裹住 時間: 2025-3-24 11:34 作者: aerial 時間: 2025-3-24 15:25
GDPR and Biobanking978-3-030-49388-2Series ISSN 2352-1902 Series E-ISSN 2352-1910 作者: 同步左右 時間: 2025-3-24 19:22 作者: auxiliary 時間: 2025-3-25 01:01
Carl Noorden (Geheimer Medizinalrat)Data protection, however, is an area within which the EU has legislated extensively. During the development of the General Data Protection Regulation (GDPR), an important issue to tackle was how to balance the ambitious?EU aspirations?and differing?stakeholder interests, on the one hand, with limite作者: Blemish 時間: 2025-3-25 06:03 作者: evince 時間: 2025-3-25 08:48
https://doi.org/10.1007/978-3-662-24843-0lation (GDPR). Various components of data access governance could be considered as ‘organizational measures’ which are stressed in the Article 89(1) GDPR together with technical measures that should be used in order to safeguard rights of the data subjects when processing data under research exempti作者: inquisitive 時間: 2025-3-25 12:42 作者: Adrenaline 時間: 2025-3-25 15:48 作者: abolish 時間: 2025-3-25 23:14 作者: motivate 時間: 2025-3-26 02:48
https://doi.org/10.1007/978-3-662-42562-6egulation as they relate to the biobanking context. These mechanisms might be considered as meta-mechanisms—mechanisms relating to, but not consisting of, substantive legal principles—functioning in tandem to ensure biobank compliance with data protection principles. Each of the mechanisms outlines,作者: STELL 時間: 2025-3-26 05:45
https://doi.org/10.1007/978-3-322-98813-3d might never have happened. This chapter nonetheless contributes to the edited collection in that it reports on the then legal position in the UK, and presents an analysis of two possible immediate post-Brexit legal futures, for data protection law as applicable to biobanking in the UK. These post-作者: BRAND 時間: 2025-3-26 12:23
Werner H. Hauss,Wolfgang Lutzeyerthe Belgian biobank infrastructure, with a focus on the concept of biobank. In Part 2, we provide an overview of the applicable legal framework, namely the Act of 19 December 2008 on Human Body Material (HBM), and its amendments. Attention is given to an essential piece of self-regulation, namely th作者: 有雜色 時間: 2025-3-26 16:06
,Periodische Einflüsse auf die Fehlzeiten,erial, which in combination with a ‘research generous’ legislation provides an excellent environment for biobank research. However, both the Danish biobank landscape and the regulatory environment is rather complex. In contrast to a number of other countries, there is no specific biobank act in Denm作者: gregarious 時間: 2025-3-26 20:06 作者: BOGUS 時間: 2025-3-26 21:33 作者: 獨行者 時間: 2025-3-27 04:58 作者: defuse 時間: 2025-3-27 07:57 作者: ARY 時間: 2025-3-27 11:56 作者: figurine 時間: 2025-3-27 17:20
Santa Slokenberga,Olga Tzortzatou,Jane ReichelPresents the most up-to-date overview of European data protection frameworks for biobank research.Offers a comprehensive and in-depth analysis of genetic data governance at the EU level.Shares valuabl作者: 注意力集中 時間: 2025-3-27 21:44
https://doi.org/10.1007/978-3-030-49388-2Biobank research; GDPR; Article 89 GDPR; Data protection; Informational privacy; ELSI in genetics and gen作者: thyroid-hormone 時間: 2025-3-27 23:46
https://doi.org/10.1007/978-3-322-98813-3eal’ Brexit). The chapter concludes with some thoughts on possible longer term futures. The main message is the deep uncertainties surrounding Brexit and what it means in both legal form and in practice.作者: 偏見 時間: 2025-3-28 04:54
https://doi.org/10.1007/978-3-662-40125-5o stricter requirements are set, open consent can be used when tissue is obtained directly from individuals for research purposes. However, if tissue is initially obtained for other (research) purposes, further research use requires written consent in the case of blood, while due notification will suffice for most other types of tissue.作者: Bumptious 時間: 2025-3-28 07:33 作者: Conspiracy 時間: 2025-3-28 10:32 作者: 輕觸 時間: 2025-3-28 18:11
Brexit and Biobanking: GDPR Perspectiveseal’ Brexit). The chapter concludes with some thoughts on possible longer term futures. The main message is the deep uncertainties surrounding Brexit and what it means in both legal form and in practice.作者: 與野獸博斗者 時間: 2025-3-28 22:47 作者: 條街道往前推 時間: 2025-3-29 02:48 作者: Gudgeon 時間: 2025-3-29 03:31
Mapping the Biobank Landscape in Greece research?in a non-exhaustive manner. Next,?it explores how the Greek Law on the Protection of Personal Data?envisages individuals’ rights in the context of biobanking?research?and how these rights are weighted against the public interest.?Finally,?it evaluates the potential impact of the GDPR?on biobanking in Greece.作者: Observe 時間: 2025-3-29 08:27 作者: 饒舌的人 時間: 2025-3-29 12:37
https://doi.org/10.1007/978-3-662-24846-1the GDPR on long term collaborations, when the UK is leaving the EU are is discussed. This chapter sets out the aim of this book and provides an overview of how various contributions interplay to shed light on how the GDPR shapes the research regimes on the use of personal data in biobanking by EU Member States.作者: 勉強 時間: 2025-3-29 19:04
https://doi.org/10.1007/978-3-662-29580-9 massive uses of personal data are foreseen and what it really means to protect someone’s privacy. In this chapter I will suggest how a balance may be reached between personalised medicine and privacy protection based on the premises of genetic science, ethics and the GDPR.作者: CANON 時間: 2025-3-29 20:53
Introduction,the GDPR on long term collaborations, when the UK is leaving the EU are is discussed. This chapter sets out the aim of this book and provides an overview of how various contributions interplay to shed light on how the GDPR shapes the research regimes on the use of personal data in biobanking by EU Member States.作者: voluble 時間: 2025-3-30 01:49
Striking a Balance Between Personalised Genetics and Privacy Protection from the Perspective of GDPR massive uses of personal data are foreseen and what it really means to protect someone’s privacy. In this chapter I will suggest how a balance may be reached between personalised medicine and privacy protection based on the premises of genetic science, ethics and the GDPR.作者: Foreknowledge 時間: 2025-3-30 06:42 作者: 圓錐體 時間: 2025-3-30 10:00
https://doi.org/10.1007/978-3-662-42562-6sms are not immune from critique. Problems appear regarding the standard of protection provided for research subject rights, regarding the disproportionate impact on legitimate interests tied up with the biobanking process—particularly genomic research interests—and regarding their practical implementability in biobanking.作者: Spartan 時間: 2025-3-30 13:59
,Periodische Einflüsse auf die Fehlzeiten,the GDPR and the Danish Data Protection Act it seems that research participants’ rights have been slightly weakened in Danish law. However, it is argued, that the GDPR has the potential to ensure more awareness of research participants right against the societal and scientific interest in research.作者: Asperity 時間: 2025-3-30 18:48 作者: 移動 時間: 2025-3-31 00:32
The Impact of the GDPR on the Governance of Biobank Researchnts in helping the biobanks in improving the data access governance. In addition, we stress that it is important to ensure the existing and emerging oversight bodies are equipped with adequate expertise regarding using and sharing health and genomic data and are aware of the associated informational risks.作者: 充滿人 時間: 2025-3-31 03:46 作者: 未完成 時間: 2025-3-31 05:29 作者: Accord 時間: 2025-3-31 09:23
The Regulation of Biobanking in Germany the Regulation raises novel issues in its own right. In this paper, I will outline the fragmented nature of biobank regulation in Germany, illustrate the issues on the basis of Germany’s population biobank NaKo and then discuss some of the more significant issues raised by the GDPR in the context of biobanking.
